Caring for someone with PAH

As a PAH patient caregiver, you play an important role in helping your loved one living with PAH. Being diagnosed with pulmonary arterial hypertension can mean big changes for him or her—and you. One of the best things you can do is to keep talking. Remind your loved one that you’re there to offer support and help along the way.

Here are some practical things you can do to help:

Educate yourself about PAH

There are several websites that can help you become more informed about PAH. You can see a list of additional resources to help you get started.

Speak with a PAH specialist

If your loved one doesn’t already have a specialist, do some research to help find one.

Organize and plan

Life with PAH has many small details to keep in mind. There are healthcare provider appointments to keep and monthly prescriptions to be received. Record important dates in a calendar or journal. This can help your loved one stay on track with treatment.

Find treatment centers near travel destinations

If you and your loved one are taking a trip out of town, look up nearby centers that have PAH specialists. You can find a list of accredited centers here.

Be open and honest

At times, you may struggle with the responsibilities that come with caring for someone with PAH. Don’t be afraid to express how you’re feeling or ask for help from others.

Offer support and learn to delegate

It’s helpful to decide who should attend healthcare provider appointments with your loved one. Remember, you need support, too. Ask other family members or loved ones to pitch in. Want to talk to another caregiver? The Pulmonary Hypertension Association has a free Caregiver-to-Caregiver Support Network.

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